Motion Detector With Recever

Families with Duchenne Syndrome Shox write me?

Hello, anyone of you knows a rare disease caused dall'alterazion Gene Shox? It's called discondrosteosi. Can be diagnosed through genetic testing. There are only two centers of excellence for the treatment of the syndrome gene Shox, in Emilia Romagna and Chieti. The Italians are a few hundred children. Not familiar with the number so far because the disease had no cure and once the centers of the small track was lost. Now there is hope for a therapy that prevents the eggs dysmorphism, deformities. In short, it's worth I groped. You make me know please if someone is in contact with these people? Thanks Margaret